Hello,
A little update on Claire for those wondering. We still don't have a certain diagnosis, but feel we are getting a little closer. She is still having seizures everyday - sometimes up to 20 or 30 so we are doing more testing. The neurologist is thinking she might have "Doose syndrome." Again - this is not a for sure diagnosis. MRI is scheduled for Friday and in about a month - up to Stanford for more EEG testing and a second opinion. Poor baby - we just want the seizures under control and to know exactly what we are dealing with. Time will tell - again - its a waiting game. Thank you everyone for your thoughts and prayers - much appreciated! I'll write again when we know more - whenever that may be.....but Claire is doing good - growing well and happy most of the time - what a sweetheart - we are so lucky to have her!